Living Well Blog

‘Health & Wellness’ Posts

How to Keep Your Sanity if Caregiving for Somebody with Parkinson’s Disease?

Sunday, January 2nd, 2011
Caregiving for and Living Well with Parkinson's Disease

Caregivers and Parkinson's

On the National Parkinson Foundation resources Library, I found a nice posting by Cathy Whitlock, who advices how to stay “sane” when caring for people with Parkinson’s Disease, which could apply to caring for senor or adult  with a brain disorder, Dementia – including Alzheimer’s, or mental illness.

She says: “…When it comes to tips for staying sane under insane circumstances, I find that simplest is best: notice your breathing, cultivate Gratitude, and let go of something  that won’t matter in the long run, where too much energy is being expended…” Ms. Whitlock says “…These three guidelines for sanity may seem obvious and simple, but when I can stay conscious enough to heed them on a weekly, if not daily basis, they make a gigantic difference in how my week goes…”

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Cycling Provides a Break for Some With Parkinson’s

Wednesday, December 15th, 2010

The New England Journal of Medicine

In an article by Gina Kolata in the New York Times, she explains how Dr. Bastiaan R. Bloem of the Radboud University Nijmegen Medical Center in the Netherlands thought he had seen it all in his years of caring for patients with Parkinson’s disease….People with Parkinson’s disease can often dance, run, walk smoothly and do complex movements for a few minutes if they are given appropriate signals — emotional or visual cues. There are famous examples, such as a group of Parkinson’s patients who were caught in a fire and managed to run down steps and escape, only to freeze in place when they got outside. But this effect, known as the kinesia paradox, does not last long. Riding for miles and miles is very different from walking for a few minutes. And until now, Dr. Bloem said, it was not known that patients with Parkinson’s could ride bikes.“The observation is so novel and exciting that I keep amazing audiences when I show this video during my lectures, even when the audience consists of movement disorder experts,” Dr. Bloem said. Of course, he added, he is not advocating that Parkinson’s patients hop on bikes and go out on busy roads. They need help in mounting a bike and can get into trouble if they have to stop at traffic lights. They need to ride in safe areas. He recommends that patients ride tricycles, or use stationary bikes or trainers — devices that turn road bikes into stationary ones. Read More

Stories of Courage: The ALS Association’s ‘ALS Across America’ Focuses On Staying Positive and Involved

Wednesday, December 15th, 2010

ALS Association

By Gary Wosk
For the third consecutive year during ALS Awareness Month, The ALS Association’s “ALS Across America” campaign is recognizing people throughout the United States living with amyotrophic lateral sclerosis for their courageous battle with Lou Gehrig’s Disease. The campaign, which was launched in mid April, shines the spotlight on men and women from all walks of life who despite having the progressive, neurodegenerative disease – which on average has a survival rate of two to five years from the time of diagnosis – think of and help others in similar circumstances before themselves. The profiles of these courageous people, including their caregivers, have been shared with the media throughout the country and are now featured on The ALS Association Web site. Read More

Depression in older persons can be treated

Wednesday, December 15th, 2010

Fortunately, the treatment prognosis for depression is good. Once diagnosed, 80 percent of clinically depressed individuals can be effectively treated by medication, psychotherapy, electroconvulsive therapy (ECT) or any combination of the three. A novel treatment transcranial magnetic stimulation (TMS) has been cleared by the FDA and may be helpful for mild depression that has not been helped by one medication trial. Medication is effective for a majority of people with depression. Four groups of antidepressant medications have been used to effectively treat depressive illness: selective serotonin re-uptake inhibitors (SSRIs) and norepinephrine and serotonin reuptake inhibitors (NSRIs), and less commonly, tricyclics, monoamine oxidase inhibitors (MAOIs),  Medication adherence is especially important, but can present challenges  among forgetful individuals.It is important to note that  all medicines have side effects as well as benefits., and the selection of the best treatment is often made based on tolerability of the side effects.
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Playing softball despite Parkinson’s disease

Wednesday, December 15th, 2010

Despite having Parkinson’s disease for the past 10 years, Bob Soulen, 69, continues to play in the Montgomery County Senior Softball League.

The Washington Post published a story and a video about Bob Soulen a well known athlete with Parkinson’s disease :”….The big first baseman trudges across the pristine infield, his walker leaving a crooked trail in the dirt. He has bandages on his knees, a bald spot where he hit his head against a door frame and an old shoulder dislocation from a spill at home… But it’s game time. The hot afternoon is giving way to the shadows of evening. And Bob Soulen, 69, who has Parkinson’s disease, is going to play some ball.

Twenty miles away, 30,000 people have streamed into Nationals Park to see Washington’s young pitching sensation, Stephen Strasburg. Here on Field No. 5 in Montgomery County’s Wheaton Regional Park, a lone fan – the wife of an opposing player – sits in the bleachers to witness a different phenomenon: an aging physicist’s determination to cling to the game of his youth.

As Soulen shuffles across the dirt, the other Mustangs are arriving, limbering up and playing catch, and Soulen is careful to lift his walker over the fresh white streak of the foul line. Like the diamond, the evening seems perfect, and in a few minutes there will be a pale moon rising over center field.

Robert J. Soulen Jr. of North Bethesda is a retired award-winning scientist who worked at the National Institute of Standards and Technology and the Naval Research Laboratory. His area of expertise is superconductivity as it relates to temperature measurement and ship propulsion.

He also plays softball in Montgomery’s senior leagues and can wax about the laws of physics as they relate to bat vs. ball…” Read the story

Chronic Disease and Improved Healthcare Outcomes Through Telehealth Monitoring

Monday, December 13th, 2010

As healthcare costs continue to increase, the government’s primary focus has been geared towards inpatient hospital stays for acute or chronic conditions. Acute or chronic conditions that could have been handled on an outpatient basis are the number one area for cost reductions. With the passage of PPACA (Patient Protection and Affordable Care Act), Congress gave Centers for Medicare and Medicaid Services (CMS) the authority to penalize hospitals for excess readmission rates starting federal fiscal year (FFY) 2013 where the initial focus will be placed on heart failure (HF), acute myocardial infarction (AMI), and pneumonia. CMS has already begun reporting readmissions rates for these conditions on its Hospital Compare Web site. The implementation of Telehealth services and devices meet care providers’ goals in improving outcomes, avoiding unnecessary readmissions and maintaining patient independence. CMS Telehealth accomplishes this by providing 24 hours a day 7 days a week comprehensive approach to Telehealth in and out-of- home, which includes: complete installation, maintenance, delivery education, training, marketing, distribution and integration of all our products and services, with a 24/7 Central Monitoring Station that is supervised by clinical and technical personnel. Read more

An Open Book in Old Age: Specialized Book Group for Marin Seniors

Monday, December 13th, 2010

San Francisco, CA (December 12, 2010) — Marin seniors will soon have an opportunity to participate in a free book group tailored to their needs, interests and perspectives.

Thanks to a partnership between the S.F.-based start-up Engage As You Age and the Berkeley-based Small Press Distributors, Marin seniors can join a six-session book group facilitated by an accomplished anthropologist and journalist. The two organizations share a vision to bring high-level conversation and social stimulation to all seniors.

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